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Fibromyalgia, myofascial
pain syndrome
| Date of Birth |
1947 |
| Occupation |
Elementary School Counselor |
| Hobbies/Activities |
skiing, dancing, used to bike and
swim, used to read (now fall asleep) |
| What condition have
you been diagnosed with? |
Fibromyalgia, myofascial
pain syndrome, neurologist found herniated cervical discs
impinging on the spinal cord (MRI), C4-5 on left, C5-6 on
right, level 4 response on reflexes, abnormal Babinski, thought
I needed surgical fusion of cervical spine. |
| How long have you been diagnosed
with this condition? |
9 10 years |
| How would you explain your diagnosis? |
-Hurts worst lying in bed at night.
Since it hurt as much lying down as doing things, I chose
to do things fortunately, so I am still functioning
relatively well, just dont do things that I know make
me worse.
- Worst pain in yoga rabbit and shavasana.
-My experience in my body is like I have a tight elastic bathing
cap around me. Sometimes, it is less tight and thick, like
a Lycra girdle. Where tendons and ligaments meet, it is like
thick knots in a ball of wool.
-My hips, shoulders and neck hurt all the time. I had severe
TMJ and was lucky to have injections that relieved that
unfortunately, the doctor who did that moved to Saudi Arabia.
-My right side is more damaged I have pain and weakness
down my neck, around and through my shoulder , down my side,
in my groin, knotted at my abdomen,/waist, knotted through
the iliopsoas, sharp pain around my sit bone, keeps me from
sleeping.
-React to cold, air conditioning with intense tightness
have to wear warm clothes on an airplane, museum, hockey game
etc.
-I have spasms, especially in my hands, and have no strength
in my hands, especially my right hand, it hurts to write. |
| What kinds of things about your
diagnosis affect you: |
|
| - Physically? |
-lots of things I cant do,
e.g. ride bike, swim, open a pop bottle, wash a window, pull
or lift things, do house cleaning, carry things, lift my arm
above my head, climb stairs or walk uphill, interferes with
gardening (fortunately, my husband and son help me, so I can
still enjoy my garden).
-Lot less energy. Sometimes, I just collapse, need to rest.
-Fatigue easily.
-Cant wear even low-heel shoes have to wear flat
shoes, or my hips hurt. |
| - Psychologically? |
Worst thing is that
people dont understand/believe, so I dont tell
most people, just try to cope. Also, whenever I get better,
I think Im cured, but inevitably, I get
worse again sometimes as a result of something like
a long flight, sometimes from some little movement. I just
seize up again. The general trend has been improvement over
the years, but the last year or so, I dont seem to progress
much, I think it may have something to do with age. |
| - General Quality of Life? |
I dont cook any more, I cant
do simple things like chop onions, my husband does most of
the cooking, but hes not as good a cook as I am (shhh,
dont tell him!). I rest more, dont have energy.
I spend a lot of time having massage and chiropractic treatments
and doing yoga. I never needed medication before now
I take a muscle relaxant during the day (used for m.s.), and
at night, a stronger muscle relaxant, sleeping pill, and pain
killers (used for m.s.) |
| What Treatments are you receiving
& how were they working? |
I have tried several varieties
of massage, chiropractic, acupuncture, physiotherapy, osteopathy,
energy healing, local anesthetic injections, probably more.
Several, but not all, have helped. I now have chiropractic
treatment 2ce a week and massage once. They help maintain
me. If I go without, I get worse. |
| How did you hear about Bikram
Yoga? |
I dont remember, but I was
one of Lisas first customers, so I am one of her oldest
customers in years with her as well as plain old years.
|
| Did you have any fear or tendencies
about the yoga? |
I stay very focused on alignment.
I dont do forward rolls I end up in severe pain
and need many chiropractic treatments to recover. |
| How long have you been practicing
the yoga? How often per week? |
About 7 years. I started off almost
daily. I now usually do Bikram between 1 3 times a
week.
|
| What changes have you noticed
in yourself that you believe are a result of you practicing
the yoga? |
Im much looser and in less
pain. When my pain increases, I increase yoga. Stretching
at the joints is particularly helpful. Also, my digestion
has improved, my skin is great, I get tons of compliments
for my youthful appearance. |
| Has any of your conventional
treatment changed since practicing the yoga? (i.e. discontinuation
of medication) |
Unfortunately, I seem to need medication.
When I have discontinued pain killers, I ended up in severe
pain. The upside is, I havent needed to increase medication
(except for my very mild daytime muscle relaxant).
|
| What would you like to tell
people who are feeling hesitant about trying the yoga? |
Yoga has amazing healing qualities.
You just need to listen to your body, because you are
your own best teacher. |
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